Gatelink.cn 罕见病关爱平台 - 关注罕见病，传递希望与爱

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link: www.gzsums.net

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link: www.mayoclinic.org

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link: my.clevelandclinic.org

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link: www.gosh.nhs.uk

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link: rarediseases.info.nih.gov

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link: ncats.nih.gov

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link: www.clinicaltrialsregister.eu

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link: www.nhsa.gov.cn

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link: www.nrdrs.org.cn

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link: www.cdpf.org.cn

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link: www.nbphsp.org.cn

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link: www.fda.gov

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link: www.ema.europa.eu

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link: www.who.int

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link: www.tga.gov.au

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link: www.pmda.go.jp

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link: www.xueyou.org

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link: www.pkujiayuan.org

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link: www.als-home.org

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link: www.albinism.cn

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link: www.gauchercare.cn

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link: www.fabrycare.cn

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link: bbs.raredisease.cn

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link: www.rdfamily.org

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link: www.pompecare.cn

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link: www.marfan.org.cn

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link: www.dmd-care.cn

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link: www.mpscare.cn

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link: www.mgcare.cn

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link: www.pso.org.cn

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text: 罕见病联盟患者服务平台 综合患者服务

link: service.crd-union.org

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link: www.sca-china.org

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link: www.tsc-china.org

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link: www.ccfa.org.cn

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link: www.ms-china.org

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link: www.lupus-china.org

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text: RareConnect 国际罕见病患者社区

link: www.rareconnect.org

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link: www.inspire.com

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link: www.patientslikeme.com

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text: Rare Disease Day 国际罕见病日

link: www.rarediseaseday.org

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link: www.smartpatients.com

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link: www.xiaohongshu.com

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link: www.facebook.com

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text: PubMed 全球医学文献数据库

link: pubmed.ncbi.nlm.nih.gov

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text: OMIM 在线人类孟德尔遗传

link: www.omim.org

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text: Orphadata Orphanet开放数据

link: www.orphadata.org

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text: DECIPHER 基因组变异数据库

link: decipher.sanger.ac.uk

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text: Human Gene Mutation Database 人类基因突变数据库

link: www.hgmd.cf.ac.uk

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link: www.cn-healthcare.com

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link: health.people.com.cn

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link: edu.raredisease.cn

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link: medlineplus.gov

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link: www.uptodate.com

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link: www.webmd.com

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link: www.medscape.com

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link: www.cma.org.cn

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link: genetics-edu.cn

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link: med.cnki.net

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link: med.wanfangdata.com.cn

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link: med.cqvip.com

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link: www.rarediseaseadvisor.com

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link: patientworthy.com

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link: rdforum.chinaicf.org

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text: 中国罕见病联盟 中国罕见病联盟官方网站

link: www.crd-union.org

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link: www.cord.org.cn

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link: www.icicle.org.cn

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link: www.chinadolls.org.cn

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text: NORD(美国) 美国国家罕见病组织

link: rarediseases.org

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link: www.orpha.net

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link: www.eurordis.org

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link: globalgenes.org

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text: Rare Diseases International 全球罕见病患者组织联盟

link: www.rarediseasesinternational.org

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link: www.crcf.org.cn

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link: www.cphcf.org.cn

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link: www.ayfoundation.org

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link: www.newsunshinecharity.org

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link: www.bdisrf.org

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link: www.cwdf.org.cn

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link: www.cfdp.org

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link: www.siyuangongcheng.org

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text: Genetic Alliance 遗传疾病联盟

link: www.geneticalliance.org

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link: everylifefoundation.org

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text: 美儿SMA关爱中心 脊髓性肌萎缩症关爱

link: www.smacare.cn

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text: Muscular Dystrophy Association 肌肉萎缩症协会

link: www.mda.org

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text: Cystic Fibrosis Foundation 囊性纤维化基金会

link: www.cff.org

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text: National Hemophilia Foundation 美国血友病基金会

link: www.hemophilia.org

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link: www.gaucherdisease.org

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link: www.als.org

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link: www.fabry.org

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text: Marfan Foundation 马凡综合征基金会

link: www.marfan.org

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link: www.npkua.org

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link: www.pwsausa.org

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link: www.turnersyndrome.org

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link: www.albinism.org.uk

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link: www.wilsonsdisease.org

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link: www.pompecommunity.org

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text: Huntington's Disease Society 亨廷顿舞蹈症协会

link: hdsa.org

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link: reverserett.org

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link: www.ehlers-danlos.com

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link: www.oif.org

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link: www.scleroderma.org

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link: www.pumch.cn

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link: www.shsmu.edu.cn

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text: 复旦儿科医院罕见病中心 儿童罕见病诊疗

link: www.chfudan.com

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text: 浙江大学医学院附属儿童医院 儿童罕见病诊治

link: www.zjuch.cn

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text: 中国医学科学院 医学研究与创新

link: www.cams.ac.cn

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link: www.anzhen.org

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link: www.scmc.com.cn

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link: www.gzwch.org

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text: 四川大学华西医院 综合罕见病诊疗

link: www.wchscu.cn

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